"We all have two people in us. We have the person that other people see us to be and the person that we are. And you are the same. And usually I have let other people see what they see in you, and let them get on with it. It's not my business." Dame Helen Mirren, Actress, Author
This is a blog to give support, promote healing and empowerment, and share stories about people living with mental and physical chronic illnesses--including but not limited to, dysautonomia, POTs, anxiety, depression, PTSD, trauma, eating disorders, self-harm, suicidal ideation, etc. I know I am much more than just another sick girl! This blog was made a long time ago and I never wanted to change the name! We are more than our chronic illnesses even when it feels like we aren't!
Wednesday, June 24, 2015
Tuesday, June 16, 2015
Don't let it stop you
This young lady does not let her Chronic Illness weighs her down and stops her from her goals in life! What an incredible story! Here is the link to a teenage girl living with neurocardiogenic syncope and is a successful athlete: http://mobile.nytimes.com/2015/06/15/sports/race-after-race-teenager-crosses-finish-line-then-collapses.html?referrer&_r=0
Find your Inspiration!
Reading this makes me want to find what inspires me to fight! I think my crazy younger brothers inspire me to love life even in the worst times. We have been on roller coaster ride of emotion and loss but we stick together. We have good days and bad days together but we still love one another.
Here is a story that I stumbled upon one of my POTS support groups sights:
http://sweetlemonpies.com/2015/06/eden-the-warrior/
Support for the Chronically Ill
Family is the most important support system, especially for me. My mother has been so amazing. She has been to every appointment and remembers to ask questions. She also listens to me when I am stressed and not feeling well. And takes care of me when I am symptomatic. It helps that she is a nurse too. My grandmothers have listened to me, taken care of me, and really try to understand what is going on with me. I think that is the most important thing to me. When some asks me what POTS is about and how it has affected my life. That is truly the best support you can give me, try to understand what I am going through. Share your own experiences too. Some of my family close and extended have done that. My closest friends have also done that and I thanked them for that. So thank you close friends and extended family for trying to understand what I am going through and just for asking how I am doing. Because honestly I am probably not doing that great.
Monday, June 8, 2015
Positive Update
Yesterday one of my best friends told me that I can't just post negative things but positive things as well on this blog. So, I decided to do an update on my health. Last week my cardiologists prescribed me some serious medication that I have to use with caution. It is called Midodrine, it is to help raise my blood pressure while standing which will lower my heart rate. I take it as needed, like this morning for example I had low BP and my heart rate went from 84 bpm sitting to 130 bpm standing. I was feeling terrible so, I took my med. It usually works a few minutes after I take it. And my good news is that I have had no side effects and it is actually helping. I have only been taking it for a week, not even, so I hope it keeps helping.
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