I was told that I set unrealistic expectations for
myself. I thought that when I was diagnosed with POTS that, sure it would be
hard but, that I could handle it. I can handle it but it is one of the hardest
things that I have ever had to deal with in my life, so far. I have been
overwhelmed recently about my treatment options (there are so many) and it
takes so much time and effort. I am a full time college student, thinking about
going to law school. I should not be thinking about treatment options and
trying new medications, I should be thinking about whether or not I want to go
law school and how I am going to pay for it. Since I have been overwhelmed with
all of this, I think about it all the time. I try to keep it in and act like I
am totally fine with how my life is changing, there are those unrealistic
expectations. But I am not fine, so I will keep it in for as long as I can,
then one day a flood of emotions come out. Being diagnosed with a chronic
illness that I have to live with for the rest of my life is physically and
emotionally draining. So, when those emotions come out the only thing I know to
do best is talk to someone that has been a huge support ever since I was diagnosed.
During our conversation, I learned that I have unrealistic expectations and
that I need to redefine my ‘normal.’ I have been living with this illness for
about four years but have only known for five months. So, right know I am
grieving the loss of my ‘normal’ life. Such as, being a typical college girl, not
being able to do simple things anymore, finding a treatment and meds that work
for me, not knowing when the bad days will come, possibly skipping class
because I don’t feel good (I have already had to do that), possibly embarrassing
myself in front of someone by passing out. There is just so much change when I
was diagnosed that I have to redefine my ‘normal.’ I have to redefine it to
something that is easier for me to live a full and happy life. So I can finish
school and get a career on track and maybe go to law school.
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