This is a blog to give support, promote healing and empowerment, and share stories about people living with mental and physical chronic illnesses--including but not limited to, dysautonomia, POTs, anxiety, depression, PTSD, trauma, eating disorders, self-harm, suicidal ideation, etc. I know I am much more than just another sick girl! This blog was made a long time ago and I never wanted to change the name! We are more than our chronic illnesses even when it feels like we aren't!
Monday, July 27, 2015
What works for me (right now)!
I have many symptoms with this syndrome. And many people including POTS patients, other people with chronic illnesses, and people who love giving suggestions all have this in common, they like to tell me what and what not to do about my illness. Yes, I do sometimes take it in but other times I could really care less what you think I should do with my illness. It is MY illness and MY body. I can make my own choices about my health. A lot of POTS patients say not to take drugs because there are too many side effects and because exercise and diet have worked for them, so it will "obviously" work for me. NO! You are wrong. I have tried all of that. I need meds to control my symptoms. I don't even take them everyday, I take them as needed, usually when I know I am going to be on my feet for awhile, or if I have an emergency (like when I am having a really bad set of symptoms or if they just come out of the blue). And guess what? They have been working, sure, I have had a few minor side effects. But I would rather deal with those than my out of control symptoms. A few symptoms I am having with my POTS is that my hands and feet get really stiff, cramped, and painful (nerve pain). Lately, my hands are ten times worse during sleep, I can't even make a fist because I am scared my fingers will curl. The meds do not help with those symptoms. So sometimes I wear a brace on my right hand, it helps a little bit, not a whole lot. Last week, I went to the Mall of America with my friends and we stopped in a store called Lush that makes "Fresh Handmade Cosmetics" and they have samples everywhere. So I tried some body scrub called "Ocean Salt," ironically, on my hands and afterwards they were the most relaxed they have been all summer. So I bought some!! It got me so excited! That is what is working for me 'right now'! Here is a link to the Lush website: http://www.lushusa.com/on/demandware.store/Sites-Lush-Site/en_US/Search-Show?q=ocean
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