Brief Discussion: Social Media and Chronic Illnesses

I don't try to always post about my illness on social media. But I feel the need to have to sometimes because I need to spread awareness of my illness. I also need to start the conversation that "it is OK to talk about your chronic illnesses when you need to." I don't know why this topic is so hard for people to talk about. I can understand that under certain circumstances that it can be. But you need to find someone you can trust. I am more than willing to to talk to someone about mine and listen to someone else about theirs. I don't try to get attention with bringing it up on social media. But it is important for people to know that chronic illness affects me everyday of my life. Seriously. If you have a chronic illness you know. It affects every aspect of my life and there is no changing that. I want to share how thankful I am for having Midodrine prescribed to me, it is working magic on me. If I wasn't on this drug, I would have passed out more, missed class more, and have turned in more late homework. The reason I am posting this right now, is because I HAD to take it today. If I hadn't taken it, I would have missed my class and still feel miserable in my bed. I only take this drug when I am on the midst of a flare-up. My heart rate got to 130bpm while just standing and when I sat down it stayed at around 113-105bpm and I felt terrible and it only takes about five minutes or so for it to kick in. This is the usual morning routine that I have to go through. Some mornings, like this morning, are just worse than others. So, yes, I am very thankful for this drug. Even though some of the side effects are not so fun. It is all worth it.